Hello from Roxanne!!

Well it's Monday afternoon and James and I are sitting at Cheryl's waiting for preschool to finish. Thought I'd let you know so far, so good. I am taking medication for nausea so I'm really drowsy. My stomach gets upset, but no major nausea. I am using my tube feed 2 or 3 times a day, but still have an appetite and want to eat. My mouth and jaw stiffens so eating is still tiring and time consuming. I actually just bought a McChicken to smell it, took 2 bites and passed it to James. I am frustrated with insomnia during the night, but hope it too will pass. Not taking any narcotics for pain, just Tylenol for sore mouth. Justin is coughing and sneezing, so I'm wearing a mask around him. We are all washing our hands like crazy and trying to lead a somewhat normal life. I'm still short of breath when walking, but my breathing at rest is so much easier. It can be frightening when you can't get air in and start coughing uncontrollably. I have a new perspective for people with other lung problems. Again, this is all an education for me to help my future patients. Thanks to the "beautiful Brule's" for the amazing walkie-talkie's. James is on an even shorter leash! HEE HEE! He can even take it to school and we can still reach him! Thank you all so much for the prayers and phone calls, I really appreciate it from the bottom of my heart.