Thursday, February 15, 2007

Hanging in there!

Hi everyone! Thank you to my "editor" Cheryl for keeping everyone in the know! I cannot thank her enough for helping me with this blog and with so much more, including James and especially Justin. I am not the brightest when it comes to computers, so I had Cheryl make it "idiot proof" for me to log on with my own computer. I am very lucky to have her!

Well, it was a good few days! Justin spent Tuesday with Auntie Nadine and cousin Mabel at the Science Centre and at their house. He loved the hockey exhibit, and I loved the peace and quiet. He's very lucky to have such awesome relatives close by. I like to keep Justin entertained by someone as I don't think it's fair for him to be "housebound" with me. He suffered enough at home with me last spring, before I was diagnosed and it's nice for him to get out.

I'm still a little concerned about germs and not quite ready to send him to the sitter where colds seem find him easily. I manage to get out for grocery shopping and watched Cheryl's kids swimming, but I am always wearing my mask in public. I'm getting used to it and people generally don't seem too alarmed by it.

My energy is pretty good, I like to rest in the afternoons as I am having a little trouble sleeping at night (always between 3:00am - 5:00 am). It can be frustrating, but I manage to get sleep somehow. My appetite is crazy!! I could eat all day if I had more teeth! I always feel hungry, which is great considering I had absolutely no appetite before chemo. I still feel too thin (I can't believe I am saying that!) and would like to put on 10 more pounds. I tube feed 2 times a day only as a means to gain weight, I'd much rather eat, eat, eat, but it's too tiring and time consuming.

Today was a busy day, Grandpa Brule is here, James was home from school, and Cheryl's kids came in the afternoon when Cheryl got called suddenly to sub teach in Balgonie. It's nice to return a favor, but the kids basically entertained themselves and Grandpa and James "supervised". I was thrilled to have a visit from my good friend Kathy Presniak with whom I worked with in Broadview. I miss work very much and love to catch up with my co-workers.

I see Dr. Salim again on Feb 26th and booked for 3 days of chemo at the Pasqua Feb 27 - Mar 1st. I pray the next round is as successful as the first. I also am booked for another CT scan on March 12th to evaluate my progress. I am very pleased and confident with Dr. Salim's care. James took me for my blood work today as it needs to be done 2 times a week.

I should warn you that no news is good news and if I don't write anything , it's because nothing is different. Trust me, if I feel lousy, I'll love to complain about it. (Which reminds me, I had a terrible back spasm last night that was awful!! Not bothering me today though, Tylenol is working). I journal my diet, medications , and thoughts everyday (and of course pray). I've said I'm not sure if it's the medication or my state of mind, but I really haven't been angry since this last diagnosis. I just take what life is handing me, get past it, and move on. It's really all I can do.

That's it for now, I'll post again on the weekend. Thanks again for all your love, prayers, and support. Call or stop in anytime!! I love to hear from you!

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